A Newport teenager, with a rare, life-limiting, neurological condition, will be taking on the Red Squirrel trails from Newport to Sandown in May to raise funds for the children’s charity, ‘When You Wish Upon A Star’.
Amelia Burns, 16, was diagnosed with MECP 2 Duplication Syndrome when she was just three. Her dad, Daniel, explained: “We were told that Amelia would be unlikely to make her teenage years and the effects of her condition mean she is both physically and mentally disabled.
“Although the condition mainly affects males, at the time of her diagnosis she was the first female diagnosed in the UK and thought to be only the second case in the world.”
Amelia, who attends St George’s School, Newport, will be helped by her family, including sister Evie (9) and brother Jonah (6), along the 10-mile walk on either May 1, 2 or 3, depending on the weather.
Daniel added: “We will be pushing Amelia in her wheelchair, with Amelia undertaking a short walk every half hour or so. We would love anyone to join us and complete their own 10-mile walk across that weekend.
“If so, we would like to suggest a minimum of £10 for each walker; alternatively, if you don’t feel up for a walk but still wish to donate, please feel free to do so.
“To bring some extra fun to the proceedings, please join in with the red squirrel theme in some shape or form; we will leave it to your very active imaginations! Feel free to share with me, though!”
You can donate to Amelia’s JustGiving page at justgiving.com/fundraising/daniel-burns16.
‘When You Wish Upon A Star’ is a charity which helps make dreams come true for children with life limiting conditions.